WELCOME TO THE HOME OF THE MDS ALLIANCE
We are an international umbrella organization dedicated to ensuring that our more than 40 national member organisations can best represent MDS patients locally, advocate for their rights, needs and access to adequate treatment and care, and equip them with the information they need to become empowered and equal partners in their treatment and care pathway.
To this end, we provide our member organisations, patients and healthcare teams with the resources and the latest information about MDS, including current treatment options, international projects and events of interest to the whole community. Learn more and become a member today!
If you are newly diagnosed with MDS, you can find initial and more comprehensive information on the disease, diagnosis and treatment here.
We know MDS patients experience chronic fatigue
but we never tire of helping them!
Our “Here to Help”, which was officially launched on October 25, 2016
during MDS World Awareness Day, is an on going activity of the
MDS Alliance to raise awareness of MDS and the MDS Alliance
network of MDS support patient support organisations.
Latest MDS Alliance News, Events and New Members
Experiences and Support Needs of Caregivers of Patients with Higher-Risk Myelodysplastic Syndrome
We are pleased to share the report of 2022 Global Survey, based on more than 700 responses from 32 countries.
Get a copy of “Out of Shape” by Bergit Kuhle: an autobiography of life after an MDS diagnosis
New Understanding, New Possibilities: Watch a video by world-renowned artist Noma Bar on this new scientific development.
Resources
Our member organizations offer a variety of online resources, print resources, newsletters, mobile apps, and more!
Learn More.
New Understanding, New Possibilities
Researchers now have a deeper understanding of the link between the immune system and how MDS develops and progresses. Watch a video on this new development.
Find your local Alliance member
Go to our members page to find your local MDS Alliance member.
This overview is interactive and detailed information is displayed by moving the mouse. Under the country name there is a (pink) reference to the health insurance system (if known) in this country.
