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We are an international umbrella organization dedicated to ensuring that our more than 40 national member organisations can best represent MDS patients locally, advocate for their rights, needs and access to adequate treatment and care, and equip them with the information they need to become empowered and equal partners in their treatment and care pathway.

To this end, we provide our member organisations, patients and healthcare teams with the resources and the latest information about MDS, including current treatment options, international projects and events of interest to the whole community. Learn more and become a member today

If you are newly diagnosed with MDS, you can find initial and more comprehensive information on the disease, diagnosis and treatment here.

We know MDS patients experience chronic fatigue

but we never tire of helping them!

Our “Here to Help”, which was officially launched on October 25, 2016

during MDS World Awareness Day, is an on going activity of the

MDS Alliance to raise awareness of MDS and the MDS Alliance

network of MDS support patient support organisations.

Click here to learn more.

Latest MDS Alliance News, Events and New Members​

Experiences and Support Needs of Caregivers of Patients with Higher-Risk Myelodysplastic Syndrome

Read more

We are pleased to share the report of 2022 Global Survey, based on more than 700 responses from 32 countries.

Read more

Get a copy of “Out of Shape” by Bergit Kuhle: an autobiography of life after an MDS diagnosis

Read more

New Understanding, New Possibilities: Watch a video by world-renowned artist Noma Bar on this new scientific development.

Read more


Our member organizations offer a variety of online resources, print resources, newsletters, mobile apps, and more!
Learn More.


Learn about the €40 million project for better care of patients with blood cancer

Learn More.

New Understanding, New Possibilities

Researchers now have a deeper understanding of the link between the immune system and how MDS develops and progresses. Watch a video on this new development.

Find your local Alliance member

Go to our members page to find your local MDS Alliance member.

Go to members page

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