LyLe – Patientassosiation for Lymphoma, Leukaemia and MDS (Denmark)

LyLe’s story
We were founded in sept. 2007 by a small group of individuals – all diagnosed with hematological cancer. Today we are a well established and very active advocacy group based on volunteers with own independent board and economy. We are funded by the Ministry of Public Health , by private funds, by members, and pharmaceutical companies. LyLe’s purpose and association’s work is based on the dialogue.

We work on 3 main areas: Dialogue with others, information and impact on systems. Our motto is: You are not alone!

Dialogue with others
LyLe facilitates contact between patients with the same disease, shortly after diagnosis, during the course of treatment or after treatment.
We also promote dialogue between the relatives and with professionals.

Information
We produce information about the disease, via magazines, booklets, and promote their distribution after the consultation, so that patients can keep it.
Through our website we provide updated links to find more information about the diseases.
We are also very active on Facebook, Twitter and on YouTube you can find all kind of informations related to hematological diseases we are working with, lymphoma, leukemia and MDS

Advocacy
We strive to interact with patient and relatives, united we stand! We also strive to have an impact in the health care system, through our political campaigning and our direct dialogue with the health service with the aim of representing patients and their needs.

Kontakt : Rita Christensen or Niels Jensen (for MDS) Tel +45 31 68 26 00
Email : rita@lyle.dk
www.lyle.dk

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