The Cancer Support Community (CSC) is a global non-profit network of 175 locations, including CSC and Gilda’s Club centers, hospital and clinic partnerships, and satellite locations that deliver more than $50 million in free support services to patients and families.
The in-person locations alone record 500,000 visits each year. In addition, CSC administers a toll-free helpline
and produces award-winning educational resources that, together with the locations, reach more than one million people each year. Formed in 2009 by the merger of The Wellness Community and Gilda’s Club, CSC also conducts cutting-edge research on the emotional, psychological, and financial journey of cancer patients.
In addition, CSC advocates at all levels of government for policies to help individuals whose lives have been disrupted by cancer. In January 2018, CSC welcomed Denver-based nonprofit MyLifeLine.org, a digital community that
includes 35,000 patients, caregivers, and their supporters that will enable CSC to scale its digital services in an innovative, groundbreaking way.
The MDS Foundation, Inc. is an international organization established in 1994 by world renowned researchers dedicated to further scientific knowledge, patient support, and education in the myelodysplastic syndromes (MDS).
The Foundation is based on the premise that international cooperation will accelerate the process leading to the control and cure of MDS. The Foundation provides research grants for scientific investigators, sponsors international working groups of scientists and physicians to further diagnostic, prognostic and treatment techniques, and disseminates information on state of the art research, clinical trials and treatments among the profesional and patient communities.
The Foundation also refers patients to its collection of ‘MDS Centers of Excellence,’ maintains an electronic fórum on its website for interaction and Support among patients, and provides educational programs for both health care professionals and patients and their families.
The Aplastic Anemia & MDS International Foundation is the world’s leading non-profit health organization dedicated to supporting patients and their families who are living with aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH) and related bone marrow failure diseases.
We are a patient-focused, patient-centered organization serving patients and families throughout the three phases of bone marrow failure diseases:
- The life-changing phase of diagnosis
- The life threatening phase of treatment
- The lifelong phase of living with a chronic disease
The Aplastic Anemia & MDS International Foundation provides answers, support and hope to thousands of patients and their families around the world.
