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ADL – Association for the Support of Patients with Leukemia and Lymphoma

ADL – Association for the Support of Patients with Leukemia and Lymphoma is the oldest Portuguese Association founded in 1997. It was born at the Centro Hospitalar Universitário in São João do Porto and has its activity recognized and legalized in this Institution.

This is a project for patients and family members that aims to complement medical and hospital work. ADL was recognized as an IPSS (Private Institution of Social Solidarity) and all the work developed is done on a voluntary basis.

Our objectives are: to humanize the health services associated with the treatment of blood cancers; train and inform patients, families and health professionals who cope and deal with these conditions; and seek solutions to problems at the medical, social, professional and legal levels.

“We believe that teaching and enlightening is the most effective way to help patients.” Maria José Parreira, MD, founder of ADL.

APLL – Portuguese Leukaemia and Lymphoma Association

The Portuguese Association of Leukemia and Lymphoma (APLL) is a non-profit Private Institution of Social Solidarity (IPSS), founded in 2001, that informs and supports people diagnosed with malignant blood diseases throughout the country.
Working areas: information, patient and caregiver support, awereness & advocacy
Information
We produce informative material such as “APLL newsletter”, flyers and leaflets for patients, families, healthcare professionals and public
We also organize a monthly online talk “Conversas soltas” with presentations by healh professionals on relevant issues for patients and caregivers.

Patient and caregiver support

All activities below are designed for patients and caregivers:

  • A dedicated telephone helpline provides direct assistance.
  • Individual psychological support is available both in person and online.
  • Physical activity programs are offered in person and online- adapted physical rehabilitation classes and Pilates

Awereness & advocacy

We organize anual public awereness campaigns focused on malignant blood diseases
We advocate for equitative care, as well as access to all available therapies for patients, promoting their active participation in treatment decisions.

“APLL believes that information, support, and solidarity transform lives.”

A Associação Portuguesa de Leucemias e Linfomas (APLL) é uma Instituição Particular de Solidariedade Social (IPSS), sem fins lucrativos, fundada em 2001, que informa e acompanha pessoas diagnosticadas com doenças malignas do sangue em todo o país.
O que fazemos:

Informação, apoio aos doentes e cuidadores, consciencialização e advocacia Informação

A APLL desenvolve iniciativas de apoio direto, promoção de saúde e literacia em oncologia, entre as quais se destacam:

Materiais informativos, como as “Notícias APLL”, folhetos e brochuras para doentes, famílias, profissionais de saúde e o público em geral.
“Conversas Soltas” – encontros informais entre doentes, cuidadores e profissionais de saúde, que incentivam o diálogo e a partilha de experiências;

Apoio a doentes e cuidadores

Todas as atividades abaixo destinam-se a doentes e cuidadores:

  • Linha telefónica dedicada para assistência direta.
  • Apoio psicológico individual, disponível presencialmente e online.
  • Programas de atividade física, presenciais e online – aulas de reabilitação física adaptada e pilates

Consciencialização e Advocacia

Organizamos campanhas anuais de consciencialização pública sobre as doenças malignas do sangue.
Defendemos cuidados equitativos, bem como o acesso a todas as terapias disponíveis para os doentes, promovendo a participação ativa nas decisões relativas ao tratamento.

“A APLL acredita que a informação, o apoio e a solidariedade transformam vidas”.

Abrale

The Brazilian Lymphoma and Leukemia Association – ABRALE works across the country to democratize the treatment and quality of life of people with hematologic malignancies to guarantee universality, equity and integral service for all.

Our activity:

Patient Support
We have a multidisciplinary team with: psychologists, who assist the patient in coping with the disease, nutritionists that elaborate personalized diets, lawyers, who give information on the rights guaranteed by law and advocate for policy improvements, nurses and social workers, who clarify doubts about the diseases and a team with committed professionals that work to improve prevention, access to treatment and better outcomes continuously.

Education and Information:
We produce information material, i.e. leaflets, booklets, videos and the Abrale magazine for patients, family members and health professionals. Abrale’s website and social networks are sources of information and contact with all Stakeholders. We also provide access to the best experts at the Abrale Meeting, a biweekly event, with free lectures, and also through Chat Abrale, an online tool to connect patients and caregivers to doctors and health professionals on different issues. We also offer sophisticated on-line educational to health professionals and physicians of the country, contributing with early diagnosis and care improvement.

Research and Data Organization:
We take advantage of technology advancements to improve knowledge about oncology facts in our country.
From patients, we have our own registry and collect real world evidence . Also we use government open data and analyze them and publish in a dynamic and interactive on line plataform. Our data scientist contribute to the understanding of the oncology scenarium.

Public policy and Advocacy:
We work intensively in the area of ​​advocacy to represent our patients before the Government. We partner with social organizations, participate in the National Health Council and events related to the theme. We collaborated to advance important laws, which greatly benefited the health system and Oncology in Brazil. Our strategy includes actions to improve public and private care in oncology , transparent and efficient use of public resources and focus on better clinical outcomes .

A Associação Portuguesa Contra a Leucemia (APCL)

A Associação Portuguesa Contra a Leucemia (APCL) foi fundada em janeiro de 2002 é uma Instituição Particular de Solidariedade Social.

A principal motivação dos Fundadores da APCL radicou na sua compreensão da importância de consciencializar e mobilizar a sociedade civil no apoio a todos os que diariamente lutam contra a devastadora doença que é a Leucemia.

A APCL tem como missão contribuir, a nível nacional, para aumentar a eficácia do tratamento das Leucemias e outras neoplasias hematológicas afins.

Os principais objetivos da Associação Portuguesa Contra a Leucemia são:

  • Casa Porto Seguro – casa de acolhimento para doentes e cuidadores em Lisboa;
  • APCL Cares – Programa de Apoio Social a doentes com dificuldades financeiras;
  • Aumento da literacia em saúde para doentes e cuidadores;
  • Grupos de Apoio para doentes e cuidadores; 
  • Bolsas de Investigação científica.

The Portuguese Association Against Leukemia (APCL) was founded in January 2002. It is a Private Institution of Social Solidarity.

The main motivation of APCL founders was their understanding of the importance of raising awareness and mobilising civil society in support of all those who struggle against Leukemia.

APCL’s mission is to contribute, at national level, to increase the effectiveness of the treatment of Leukemias and other related haematological malignancies.

The main objectives of the Portuguese Association Against Leukemia are:

  • Casa Porto Seguro – reception house for patients and caregivers in Lisbon;
  • APCL Cares – Social Support Program for patients with financial difficulties;
  • Increased health literacy for patients and caregivers;
  • Support groups for patients and caregivers;
  • Scientific research grants.