AIL – Associazione Italiana contro Leucemie Linfoma e Mieloma

  • AIL nasce nel 1969 assieme ai primi reparti di Ematologia, con lo scopo di finanziare la ricerca scientifica e lo sviluppo di centri specializzati sul territorio nazionale. Nel tempo l’Associazione è riuscita a creare una rete di sostegno e assistenza, diventando un punto di riferimento per l’Ematologia e per i pazienti in Italia.
  • AIL promuove e sostiene la ricerca scientifica per la cura delle leucemie, dei linfomi e del mieloma; assiste i pazienti e le famiglie accompagnandoli in tutte le fasi del percorso attraverso la malattia con servizi adeguati alle loro esigenze; si propone di migliorare la qualità di vita dei malati e di sensibilizzare l’opinione pubblica alla lotta contro le malattie del sangue.

Italian Association against Leukemia Lymphoma and Myeloma

  • AIL was founded in 1969 together with the first hematology departments, with the aim of financing scientific research and the development of specialized centers throughout the country. Over time, the association has managed to create a support and assistance network, becoming a point of reference for Hematology patients in Italy.
  • AIL promotes and supports scientific research for the treatment of leukemia, lymphomas and myeloma; assists patients and families by accompanying them in all phases of the path through the disease with services adapted to their needs; aims to improve the quality of life of the sick and to raise public awareness of the fight against blood diseases.

Associazione Italiana Pazienti con Sindrome Mielodisplastica (AIPaSiM)

AIPaSiM is a patient-governed society supporting patients with MDS in Italy
Our mission is :

  • to be a source of disease and treatment-related knowledge for patients and their caregivers
  • to be a platform to connect patients and family members (also by organizing local and national meetings)
  • to connect patients to experts clinicians and improving doctor-patient dialogue
  • to represent patient perspective in debate with other stakeholders within the national healthcare system

Fax number +39 0287152199

Sarah Liptrott – European Institute of Oncology, Milan, Italy

Sarah Liptrott is a Clinical Research Nurse in the Division of Haematology/BMT at the IEO. She graduated from Liverpool University with a Bachelor of Nursing (Hons), and obtained her Masters Degree at Staffordshire University. Throughout her career, Sarah has specialised within oncology, working within surgery and medicine as well as chemotherapy units. In her role as Clinical Nurse Specialist she developed nurse led clinics and implemented nurse prescribing into the haemato-oncology field. She has worked as Clinical Trial Team Leader responsible for the research team and achievement of UK national targets. Sarah has authored or co-authored numerous articles in high-quality scientific journals as well as being an invited reviewer. Her educational developments include BMT training/chemotherapy/clinical trials in both UK and European settings. She has served on many committees including the European Group for Blood and Marrow Transplantation Nurses Group Research Sub Committee and is a member of the RCN – Cancer Forum and Haematology & BMT Forums.