ASLEUVAL | MDS Alliance

Abrale

Contact : Merula Steagall / Dina Steagall Tel: +55 119 8201 3800
Email : merula@abrale.org.br / dina@abrale.org.br
https://www.abrale.org.br/

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aeal

Contact : Begoña Barragán - Presidenta
Email : info@aeal.es
http://www.aeal.es/

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Aplastic Anemia & MDS International Foundation

Contact : Neil Horikoshi, CEO & Executive Director
Email : horikoshi@aamds.org
www.aamds.org

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Aplastic Anemia and Myelodysplasia Association of Canada

Contact : Cindy Anthony
Email : 4anthony@rogers.com
www.aamac.ca

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APLL – Portuguese Leukaemia and Lymphoma Association

Email : geral@apll.org
https://www.apll.org/

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ASLEUVAL

Contact : Elena Butler Tel: 96 340 93 61
Email : info@asleuval.org
https://asleuval.org/Default.aspx

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Association of citizens for rare diseases life with challenges Bitola

Contact : Vesna Aleksovska
Email : zivotsopredizvici@gmail.com
www.challenges.mk

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Associazione Italiana Pazienti con Sindrome Mielodisplastica (AIPaSiM)

Contact : Paolo Pasini
Email : info@aipasim.org
aipasim.org

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Cancer Support Community of Kosovo

Contact : Blerina Ahmetaj-Shala / Fisnik Shala
Email : info@csckosovo.com
www.csckosovo.com

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CONNAÎTRE ET COMBATTRE LES MYÉLODYSPLASIES

Contact : Jacqueline Dubow (Vice-President) Pascale Chemli (President)
Email : associationccm@yahoo.fr
www.myelodysplasies.org

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Croatian Leukemia and Lymphoma Society

Contact : Dražen Vincek Tel: +385 91 4873561
Email : udruga.hull.zagreb@gmail.com
www.hull.hr

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DIAGNOZA LEUKEMIE, z. s.

Contact : Jana Pelouchova Tel +420 728308360
Email : jana.pelouchova@diagnozaleukemie.cz
www.diagnoza-leukemie.cz

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HematologickyPacient – Association of Patients with Hematological Maligancies

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Hematon Foundation

Contact : Jan Boonstra
Email : secretariaat@hematon.nl
www.hematon.nl

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Japan MDS patient support group (JAMPS)

Contact : Yumi Yamamoto / Mika Ogata Tel +81-80-4464-8571; +81-3-3425-2808
Email : yamamoto@mdssupport.net / yamamoto@MRCJAPAN.com
http://www.mdssupport.net/

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Korea Blood Disease and Cancer Association

Contact : Chul Hwan Lee (Exec Director) / Wonyoung Jang (General Manager of KBDCA) Tel +82 2 3432 0807
Email : bloodcancer@daum.net
www.kbdca.or.kr

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Leukaemia & Blood Cancer New Zealand

www.leukaemia.org.nz/

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LHRM-MDS Patienten-Interessen Gemeinschaft

Contact : Bergit Kuhle: LHRM Office - Steering Committee Member
Email : b.kuhle@t-online.de / buero@LHRM.de
www.mds-patienten-ig.org

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Linfomas Argentina

Contact : Haydee Gonzalez
Email : hgonzalez@linfomasargentina.org
www.linfomasargentina.org/home.php

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LyLe – Patientassosiation for Lymphoma, Leukaemia and MDS (Denmark)

Contact : Rita Christensen or Niels Jensen (for MDS) Tel +45 31 68 26 00
Email : rita@lyle.dk / Niels@lyle.dk
www.lyle.dk

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Magyar Onkohematológiai Betegekért Alapítvány (MOHA) – Foundation for Hungarian Oncohaematological Patients

Contact : Ibolya Kéri
Email : moha@onkohemat.hu
www.onkohemat.hu/

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MDS Contactgroup

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MDS Foundation, Inc.

Contact : Tracey Iraca, Executive Director
Email : tiraca@mds-foundation.org
www.mds-foundation.org

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MDS platform Switzerland: a group of LYMPHOME.CH Patientennetz Schweiz

Contact : Rosmarie Pfau
Email : r.pfau@lymphome.ch
www.lymphome.ch

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MDS UK Patient Support Group

Contact : Sophie Wintrich Tel +44 20 7733 7558
Email : sophiew@mdspatientsupport.org.uk
www.mdspatientsupport.org.uk

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Portuguese Association against Leukemia and other hemato oncological diseases

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Sarah Liptrott – European Institute of Oncology, Milan, Italy

Contact : Sarah Liptrott
Email : sarah.liptrott@ieo.it
https://www.ieo.it/en/

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Slovenian lymphoma and leukemia patient association, L&L

Contact : Kristina Modic / Brina Zagar Tel: +38 640240950
Email : modic.kristina@gmail.com
http://www.limfom-levkemija.org/domov.html

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Suomen Syöpäpotilaat ry – Association of Cancer Patients in Finland

Contact : Minna Anttonen (Chief Executive and contact) Mirjami Tran Minh (Contact) Helena Hurme Tel + 358 44 240 5649
Email : mirjami.tranminh@syopapotilaat.fi
www.syopapotilaat.fi

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TAMID – The Israeli Association for Myelodisplastic Syndrome

Contact : Iris Yahal
Email : office@mds.org.il
www.mds.org.il

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The Leukaemia Foundation (Australia)

Email : info@leukaemia.org.au
www.leukaemia.org.au

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The Public Organization For Patients with Hematological Diseases “Mercy Bridge” (“Most Miloserdiya”)

Contact : Oksana Chirun
Email : Oksana.chirun@gmail.com / info@mm-blood.ru
www.mdspatient.ru
www.mm-blood.ru

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