ASLEUVAL - MDS Alliance

Abrale

Contact : Merula Steagall / Dina Steagall Tel: +55 119 8201 3800
Email : merula@abrale.org.br / dina@abrale.org.br
https://www.abrale.org.br/

Learn More

ADL – Association for the Support of Patients with Leukemia and Lymphoma

Contact : Maria de Fátima Ferreira – Managing Director
Email : adlleucemialinfoma@gmail.com
www.adl.pt

Learn More

aeal

Contact : Begoña Barragán - Presidenta
Email : info@aeal.es
http://www.aeal.es/

Learn More

Aplastic Anemia & MDS International Foundation

Contact : Neil Horikoshi, CEO & Executive Director
Email : horikoshi@aamds.org
www.aamds.org

Learn More

Aplastic Anemia and Myelodysplasia Association of Canada

Contact : Cindy Anthony
Email : 4anthony@rogers.com
www.aamac.ca

Learn More

APLL – Portuguese Leukaemia and Lymphoma Association

Email : geral@apll.org
https://www.apll.org/

Learn More

ASLEUVAL

Contact : Elena Butler Tel: 96 340 93 61
Email : info@asleuval.org
https://asleuval.org/Default.aspx

Learn More

Association of citizens for rare diseases life with challenges Bitola

Contact : Vesna Aleksovska
Email : zivotsopredizvici@gmail.com
www.challenges.mk

Learn More

Associazione Italiana Pazienti con Sindrome Mielodisplastica (AIPaSiM)

Contact : Paolo Pasini
Email : info@aipasim.org
aipasim.org

Learn More

Cancer Support Community of Kosovo

Contact : Blerina Ahmetaj-Shala / Fisnik Shala
Email : info@csckosovo.com
www.csckosovo.com

Learn More

CONNAÎTRE ET COMBATTRE LES MYÉLODYSPLASIES

Contact : Jacqueline Dubow (Vice-President) Pascale Chemli (President)
Email : associationccm@yahoo.fr
www.myelodysplasies.org

Learn More

Croatian Leukemia and Lymphoma Society

Contact : Dražen Vincek Tel: +385 91 4873561
Email : udruga.hull.zagreb@gmail.com
www.hull.hr

Learn More

DIAGNOZA LEUKEMIE, z. s.

Contact : Jana Pelouchova Tel +420 728308360
Email : jana.pelouchova@diagnozaleukemie.cz
www.diagnoza-leukemie.cz

Learn More

ESPERANTRA

Contact : Karla Ruiz de Castilla
Email : karla@esperantra.org / informes@esperantra.org
https://www.esperantra.org/

Learn More

HEMA: Association for help & support of patients with haematological diseases & their caregivers

Contact : Lidija Pecova – President Mirjana Babamova – Program Manager
Email : mirjana.hema@gmail.com
www.hema.org.mk

Learn More

HematologickyPacient – Association of Patients with Hematological Maligancies

Learn More

Hematon Foundation

Contact : Jan Boonstra
Email : secretariaat@hematon.nl
www.hematon.nl

Learn More

Japan MDS patient support group (JAMPS)

Contact : Yumi Yamamoto / Mika Ogata Tel +81-80-4464-8571; +81-3-3425-2808
Email : yamamoto@mdssupport.net / yamamoto@MRCJAPAN.com
http://www.mdssupport.net/

Learn More

Korea Blood Disease and Cancer Association

Contact : Chul Hwan Lee (Exec Director) / Wonyoung Jang (General Manager of KBDCA) Tel +82 2 3432 0807
Email : bloodcancer@daum.net
www.kbdca.or.kr

Learn More

Leukaemia & Blood Cancer New Zealand

www.leukaemia.org.nz/

Learn More

LHRM-MDS Patienten-Interessen Gemeinschaft

Contact : Bergit Kuhle: LHRM Office - Steering Committee Member
Email : b.kuhle@t-online.de / buero@LHRM.de
www.mds-patienten-ig.org

Learn More

Linfomas Argentina

Contact : Haydee Gonzalez
Email : hgonzalez@linfomasargentina.org
www.linfomasargentina.org/home.php

Learn More

LyLe – Patientassosiation for Lymphoma, Leukaemia and MDS (Denmark)

Contact : Rita Christensen or Niels Jensen (for MDS) Tel +45 31 68 26 00
Email : rita@lyle.dk / Niels@lyle.dk
www.lyle.dk

Learn More

Magyar Onkohematológiai Betegekért Alapítvány (MOHA) – Foundation for Hungarian Oncohaematological Patients

Contact : Ibolya Kéri
Email : moha@onkohemat.hu
www.onkohemat.hu/

Learn More

MDS Contactgroup

Learn More

MDS Foundation, Inc.

Contact : Tracey Iraca, Executive Director
Email : tiraca@mds-foundation.org
www.mds-foundation.org

Learn More

MDS platform Switzerland: a group of LYMPHOME.CH Patientennetz Schweiz

Contact : Rosmarie Pfau
Email : r.pfau@lymphome.ch
www.lymphome.ch

Learn More

MDS UK Patient Support Group

Contact : Sophie Wintrich Tel +44 20 7733 7558
Email : sophiew@mdspatientsupport.org.uk
www.mdspatientsupport.org.uk

Learn More

Portuguese Association against Leukemia and other hemato oncological diseases

Learn More

Sarah Liptrott – European Institute of Oncology, Milan, Italy

Contact : Sarah Liptrott
Email : sarah.liptrott@ieo.it
https://www.ieo.it/en/

Learn More

Slovenian lymphoma and leukemia patient association, L&L

Contact : Kristina Modic / Brina Zagar Tel: +38 640240950
Email : modic.kristina@gmail.com
http://www.limfom-levkemija.org/domov.html

Learn More

Suomen Syöpäpotilaat ry – Association of Cancer Patients in Finland

Contact : Minna Anttonen (Chief Executive and contact) Mirjami Tran Minh (Contact) Helena Hurme Tel + 358 44 240 5649
Email : mirjami.tranminh@syopapotilaat.fi
www.syopapotilaat.fi

Learn More

TAMID – The Israeli Association for Myelodisplastic Syndrome

Contact : Iris Yahal
Email : office@mds.org.il
www.mds.org.il

Learn More

The Leukaemia Foundation (Australia)

Email : info@leukaemia.org.au
www.leukaemia.org.au

Learn More

The Myeloma, Lymphoma & Leukaemia Foundation of Barbados (MLLF)

Contact : Myrna Edwards – President Hyacinth Grimes – Vice President
Email : medwards@bloodcancers.org / hfgrimes@bloodcancers.org
www.bloodcancers.org

Learn More

The Public Organization For Patients with Hematological Diseases “Mercy Bridge” (“Most Miloserdiya”)

Contact : Oksana Chirun
Email : Oksana.chirun@gmail.com / info@mm-blood.ru
www.mdspatient.ru
www.mm-blood.ru

Learn More