MDS World Awareness Day 2024
United for MDS
Every 25 October, the MDS Alliance and its member groups around the world unite to raise awareness of Myelodysplastic Syndromes (MDS) – a rare type of blood cancer where the bone marrow does not produce enough healthy blood cells. MDS varies in severity. Some forms may remain mild and undetected for years, while others are more aggressive and can significantly affect a patient’s quality of life.
For MDS World Awareness Day 2024, our focus extends beyond just sharing information about the signs and symptoms of MDS. We are also emphasising the important role that MDS patient organisations play in supporting both patients and caregivers.
These groups offer essential resources, guidance and emotional support that can make a meaningful difference in managing the disease. Additionally, patients, caregivers and healthcare professionals will share their insights on how early involvement with support organisations can improve patient experiences.
How can you get involved?
You can help drive awareness about MDS and the organisations dedicated to assisting its patients by sharing our materials on your social media. Together, we can ensure much-needed help, including useful information on MDS and its symptoms, is available for the community.
When sharing, posting and commenting about MDS World Awareness Day on social media, don’t forget to add the hashtags: #MDSWAD2024 #United4MDS #ThinkMDS
Please also encourage others to check our list of MDS Alliance member organisations, or to seek out patient organisations in the regions closest to them. With our joint efforts, every MDS patient should be able to find a support group that best meets their needs, and to have them involved early in their care and treatment journey.
Stand United for MDS!
Campaign toolkit
Download the briefing guide and social media planner to understand how you can get involved and support the campaign.
Social media graphics
Download or share these graphics. Remember the hashtags: #MDSWAD2024 #United4MDS #ThinkMDS
Facebook, LinkedIn and XLandscape format
InstagramSquare format
Interviews
Healthcare professionals on the role patient organisations play in supporting people with MDS.
What are patient organisations and what is their main role in supporting MDS patients in view of your work as a healthcare professional?
What advice would you give to your colleagues or other healthcare professionals who may be less aware of the importance of patient organisations?
What questions do patients have, and what do you say to help them understand how patient organisations impact their experience?
What are the biggest challenges patients need to overcome in their MDS journeys, and how can patient organisations support them?
How do you see the role of patient organisations evolving?
Need to add your own message or logo?
You can customise these graphics using the editable file options.
- Edit the designs on the Canva board: Open Canva
- How-to guide for updating the Canva designs: Download the guide
More MDS information and member resources
For global MDS support information and MDS Alliance member group resources and materials, visit our resources page.
