Our Team & Partners
Stichting MDS Alliance
Our Mission
The MDS Alliance is an international umbrella organisation that aims to ensure patients with Myelodysplastic Syndromes (MDS) have access to the best multiprofessional care, regardless of where they live.
Representing more than 40 patient advocacy groups around the world, we campaign and collaborate to amplify the voice of smaller organisations and help patients and health professionals to establish new patient support groups where they do not exist.
Our shared voice as a group with a common cause places us in a unique position to offer support via education, resources and knowledge of MDS globally.
Our Mission is Based on Three Pillars
Information & Resources
The MDS Alliance provides its members, patients and healthcare teams with the resources and the latest information about MDS and its various forms. This includes current treatment options, international projects and events of interest to the whole community.
Guidance & Advice
The MDS Alliance shares best practices and skills amongst its membership and provides a forum for advice and guidance on a wide range of issues affecting patients suffering from MDS, such as cost effectiveness of medicines and treatments, fertility issues and more.
Representation & Advocacy
To ensure a lasting and sustainable difference, there needs to be a strong voice for all MDS patients worldwide – and the MDS Alliance strives to be this voice through collaboration with healthcare professionals, researchers, and policymakers across the globe.
Organizational Structure
The governance of the MDS Alliance Foundation consists of the Steering Committee, the Board of Directors and the Executive Director.
Steering Committee
Jacqueline Dubow
Chair
Gereon Mänzel
Co-CEO
Blerina Shala
Member
Cindy Anthony
Member
Debbie Hickman
Co-CEO
Jungsook Park
Member
Board of Directors
Gereon Mänzel
Director
Debbie Hickman
Director & Treasurer
Executive Director
Fisnik Shala
The members of the Steering Committee and the directors do not receive any remuneration for their activities. Expenses incurred, such as travel costs, may be reimbursed.
Our Partners
We are proud to work alongside these pharmaceutical partners in advancing MDS research and treatment
Otsuka
Servier
Geron
Hemavant
Novartis
AbbVie
Bristol Myers Squibb
These partnerships enable us to strengthen our advocacy efforts, expand our educational programs, and ensure the patient voice is heard in research and development. Together, we work toward better outcomes for the MDS community worldwide.
