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Home
COVID-19
Our Members
Image Gallery
News
Events
MDS World Awareness Day
Blood Cancer Awareness Month 2022
Resources
Educational Webinars
Infographics to share
Here to Help Resources
Ten Facts about MDS
Types of MDS
Membership
Mission and Membership Criteria
Membership Application Form
Create Your Own Support Group
Meeting Activities & Evaluation
Creating a National Group
Contact
Patients & Carers
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Our Supporters
Helping to better serve the MDS patient and caregiver community globally through optimal care for all MDS patients worldwide
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MDS New Understanding, New Possibilities
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Webinar invitation
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Rare Disease Day
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IPSS-M Risk Calculator for MDS
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Rethinking blood use in Europe to improve patient outcomes
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Emergency Health Information Card
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MDS World Awareness Day
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Bone Marrow Failure and the Coronavirus (COVID-19): Multilingual Resources & Frequently Asked Questions
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The MDS Global Survey is now closed
15 November 2021
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Want to learn about novel approaches in MDS?
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The latest on MDS, its prognosis and its treatment
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62nd ASH Annual Meeting and Exposition
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MDS World Awareness Day 2020: Faces of MDS – Watch the Video
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Get a copy of “Out of Shape” by Bergit Kuhle: an autobiography of life after an MDS diagnosis
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HARMONY: a €40 million PROJECT FOR BETTER CARE OF PATIENTS WITH HEMATOLOGIC MALIGNANCIES
Brussels/Salamanca – January 9, 2017
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Urgent appeal to healthy people: Please give blood now!
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Coronavirus (COVID-19) Guidance for Patients and Caregivers
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MDS World Awareness Day 2019: MDS Poetry
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Precision medicine to treat MDS in Denmark: good news for patients worldwide
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Much new knowledge but no new drugs
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The Canyon between Diagnosis and Therapy in MDS
12 June 2019
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Has your Patient Group set up a reasonable legal agreement with a Pharmaceutical Company?
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Global Quality of Life Survey for Patients with Acute Leukemia
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Focus on Croatia: MDS Alliance Members’ News
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Focus on Kosovo: MDS Alliance Members’ News
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Focus on Finland: MDS Alliance Members' News
13 June 2018
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EuroBloodNet seeks better care for patients with rare blood disorders
01 June 2018
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Latest News from Our Members
07/12/2017
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MDS Awareness Day 2017: How we bombarded the Twitter world with MDS facts
26/10/2017
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Can MDS experts review (and help) more patients please? A one-off specialist consultation should be offered to all newly diagnosed patients
19th April 2017
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Self reported fatigue provides prognostic information and should be included in routine diagnostics and controlled trials
12 April 2017
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Update on the work around the ERN European Reference Networks.
Thursday, July 28, 2016
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POST ASH 2016 Report
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