Survey Reports
2024 Global Patient Survey
The latest MDS Alliance global patient survey report, capturing patient experience data from around the world.
2022 Global Patient Survey
Findings from the 2022 survey, based on responses from nearly 700 MDS patients across 32 countries.
Survey Focus Areas
Diagnosis Journey
Understanding the path from symptoms to diagnosis and early treatment decisions.
- Time to diagnosis
- Specialist access
- Initial information
- Patient concerns
Treatment Access
Mapping access to treatments, medications, and specialized care across different regions.
- Available therapies
- Treatment barriers
- Insurance coverage
- Clinical trial access
Quality of Life
Assessing the impact of MDS on daily living, work, relationships, and well-being.
- Symptom burden
- Emotional impact
- Support needs
- Resource access
How Survey Results Help
Survey data drives our advocacy work, informs clinical guideline development, and helps identify gaps in care and support services. Your voice matters in improving MDS care globally.
Interested in participating in future surveys?
Contact us at [email protected]
Global Patient Survey
Understanding the patient experience to improve MDS care worldwide
About the Survey
The MDS Alliance conducts regular global surveys to capture the experiences, challenges, and needs of people living with Myelodysplastic Syndromes around the world. Your participation helps shape better care, support, and advocacy efforts.
Survey Reports
2024 Global Patient Survey
The latest MDS Alliance global patient survey report, capturing patient experience data from around the world.
2022 Global Patient Survey
Findings from the 2022 survey, based on responses from nearly 700 MDS patients across 32 countries.
Survey Focus Areas
Diagnosis Journey
Understanding the path from symptoms to diagnosis and early treatment decisions.
- Time to diagnosis
- Specialist access
- Initial information
- Patient concerns
Treatment Access
Mapping access to treatments, medications, and specialized care across different regions.
- Available therapies
- Treatment barriers
- Insurance coverage
- Clinical trial access
Quality of Life
Assessing the impact of MDS on daily living, work, relationships, and well-being.
- Symptom burden
- Emotional impact
- Support needs
- Resource access
How Survey Results Help
Survey data drives our advocacy work, informs clinical guideline development, and helps identify gaps in care and support services. Your voice matters in improving MDS care globally.
Interested in participating in future surveys?
Contact us at [email protected]
