The MDS Alliance welcomes patient advocacy organizations to become part of our global network. By working together, we can ensure that all patients with MDS worldwide have access to the best available care and information.
We are dedicated to amplifying the voice of patients and smaller organizations, sharing resources, and driving policy change for the MDS community.
Our Mission
To ensure that all patients with MDS worldwide have access to the best available care and information.
Our Vision
A world where every MDS patient receives optimal care and support, regardless of location.
Who We Are
The MDS Alliance is directed by a Leadership Group comprising representatives from MDS patient advocacy organizations. This group provides strategic direction and oversight for alliance initiatives.
We represent more than 40 patient advocacy groups around the world, campaigning and collaborating to help patients and health professionals establish new support networks where they do not yet exist.
Contact Us for More Information
If your organization is interested in becoming a member, or if you would like more information about the MDS Alliance, please get in touch with us using the form below.

