List of selected resources available from each member organization.

Resources for Patients & Caregivers Resources for Healthcare Professionals

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Patients and Caregivers

Name of Resource	Topic of Resource	Language	Organization	Format
Blog	Patient Experiences	German	LHRM-MDS PAT-IG Germany	Online
Blood Transfusions patient guide	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Online
Bone Marrow and Stem Cell Transplantation	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Online
Building Blocks of Hope	General Patient MDS Information	Armenian	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	French	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	Chinese	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	Dutch	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	German	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	Spanish	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	Turkish	MDS Foundation	Printable
Building Blocks of Hope	General Patient MDS Information	English	MDS Foundation	Online
Clinical Trial Updates	MDS Treatment Options	English	MDS Foundation	Online
Clinical Trials Factsheet	MDS Treatment Options	English	MDS UK Patient Support Group	Printable
Clinical Trials List	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Online
Different Types of Myelodysplastic Syndromes	MDS Diagnosis	English	MDS UK Patient Support Group	Online
Facebook Group	Social Media	English	Aplastic Anemia & MDS International Foundation	Social Media
Facebook Group	Social Media	German	LHRM-MDS PAT-IG Germany	Social Media
Facebook Group	Social Media	English	MDS Foundation	Social Media
Facebook: Public (open) and Community (closed)	Social Media	English	MDS UK Patient Support Group	Online
Fatigue Factsheet	Quality Of Life in MDS	English	MDS UK Patient Support Group	Printable
Genetics: where we are now and where we are heading	MDS Diagnosis	English	MDS UK Patient Support Group	Video
Glossaries for MDS-related terminology	General Patient MDS Information	German	LHRM-MDS PAT-IG Germany	Online
Glossary of MDS Terms	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Online
How to Evaluate Health Information on the Internet	Quality Of Life in MDS	English	Aplastic Anemia & MDS International Foundation	Online
Interviews with MDS Experts	General Patient MDS Information	English	MDS UK Patient Support Group	Video
Iron Overload	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Video
List of all MDS Centers of Excellence (US and International locations)	Specialist Centres	English	MDS Foundation	Online
Live events MDS-related patient- & and family days	General Patient MDS Information	German	LHRM-MDS PAT-IG Germany	Online
Living with MDS	Quality Of Life in MDS	English	MDS UK Patient Support Group	Online
MDS Clinical Trials List	MDS Treatment Options	German	LHRM-MDS PAT-IG Germany	Online
MDS Clinical Trials List	MDS Treatment Options	English	MDS UK Patient Support Group	Online
MDS Drug Therapies patient guide	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Online
MDS Foundation App	General Patient MDS Information	English	MDS Foundation	Mobile App
MDS Handbook	General Patient MDS Information	English	MDS UK Patient Support Group	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	Spanish	Aplastic Anemia & MDS International Foundation	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	Portuguese	Aplastic Anemia & MDS International Foundation	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	French	Aplastic Anemia & MDS International Foundation	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	German	Aplastic Anemia & MDS International Foundation	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Printable
MDS Handbook - Understanding MDS patient guide	General Patient MDS Information	Italian	Aplastic Anemia & MDS International Foundation	Printable
MDS Interactive learning modules	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Online
MDS Online Forum	Patient to Patient Support	English	MDS UK Patient Support Group	Message Board
MDS Patient Survey UK	Surveys - Questionnaires	English	MDS UK Patient Support Group	Online
MDS Risk Scoring	MDS Diagnosis	English	MDS UK Patient Support Group	Online
MDS Specialist Centres Germany	Specialist Centres	German	LHRM-MDS PAT-IG Germany	Online
MDS Specialist Centres UK	Specialist Centres	English	MDS UK Patient Support Group	Online
MDS Treatment Tracker	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Printable
MDS-Quiz	General Patient MDS Information	German	LHRM-MDS PAT-IG Germany	Online
MDS-Video	General Patient MDS Information	German	LHRM-MDS PAT-IG Germany	Video
MDS/MPN Related	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Online
Message board	Patient to Patient Support	English	MDS Foundation	Message Board
Message board www.marrowforums.com	Patient to Patient Support	English	Aplastic Anemia & MDS International Foundation	Message Board
Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients	General Patient MDS Information	English	ICBCC	Printable
Nutrition Factsheet	Quality Of Life in MDS	English	MDS UK Patient Support Group	Printable
Patient Experiences and Stories	Patient Experiences	German	LHRM-MDS PAT-IG Germany	Online
Patient Experiences and Stories	Patient Experiences	English	MDS UK Patient Support Group	Online
Patient Information meetings - videos	General Patient MDS Information	German	LHRM-MDS PAT-IG Germany	Video
Patient Tracker	Patient Diaries	English	Aplastic Anemia and Myelodsyplasia Association of Canada	Printable
Presentations from congresses	MDS Research	German	LHRM-MDS PAT-IG Germany	Online
Research Summaries for patients	MDS Research	English	Aplastic Anemia & MDS International Foundation	Printable
The Five Principles of Standing Up for Your Health	Quality Of Life in MDS	English	Aplastic Anemia & MDS International Foundation	Online
Travel Insurance Factsheet	Quality Of Life in MDS	English	MDS UK Patient Support Group	Printable
Treatment of elderly MDS patients	MDS Treatment Options	English	MDS UK Patient Support Group	Printable
Treatment of MDS	MDS Treatment Options	English	MDS UK Patient Support Group	Online
Twitter account	Social Media	English	Aplastic Anemia and Myelodsyplasia Association of Canada	Social Media
Twitter account	Social Media	English	MDS UK Patient Support Group	Social Media
Vidaza / Azacitidine: Learn all about this drug	MDS Treatment Options	English	MDS UK Patient Support Group	Online
Webcasts	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Video
Webinars	General Patient MDS Information	English	MDS Foundation	Video
What Does My Bone Marrow Do?	General Patient MDS Information	Chinese	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Czech	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Danish	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Dutch	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	French	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	German	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Italian	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Japanese	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Portuguese	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Romanian	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Russian	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	English	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Spanish	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Swedish	MDS Foundation	Printable
What Does My Bone Marrow Do?	General Patient MDS Information	Turkish	MDS Foundation	Printable
What is CAR-T cell therapy? Learn how this immunotherapy works	MDS Treatment Options	English	MDS UK Patient Support Group	Online
What is MDS?	General Patient MDS Information	English	Aplastic Anemia & MDS International Foundation	Mobile App
What is MDS?	General Patient MDS Information	English	MDS UK Patient Support Group	Online

Healthcare Professionals

Name of Resource	Topic of Resource	Language	Organization	Format
Clinical Toolbox	General Patient MDS Information	English	MDS Foundation	Online
GP Factsheet	Clinical Staff MDS Information	English	MDS UK Patient Support Group	Printable
Highlights of Latest Literature in MDS	Clinical Staff MDS Information	English	MDS Foundation	Online
Interactive learning modules for nurses	Clinical Staff MDS Information	English	Aplastic Anemia & MDS International Foundation	Online
IPSS-R Calculator	MDS Diagnosis	English	MDS Foundation	Online
List of Related Organizations	Clinical Staff MDS Information	English	MDS Foundation	Online
MDS Professional Education	Clinical Staff MDS Information	English	MDS Foundation	Online
MDS Research Updates (For Physicians)	MDS Research	English	Aplastic Anemia & MDS International Foundation	Online
MDS Risk Classification	MDS Diagnosis	English	Aplastic Anemia & MDS International Foundation	Mobile App
MDS Videos	General Patient MDS Information	English	MDS Foundation	Video
Online Courses	Clinical Staff MDS Information	English	Aplastic Anemia & MDS International Foundation	Online
The Diagnostic Spectrum of MDS MDS/MPN and MF reference card	Clinical Staff MDS Information	English	Aplastic Anemia & MDS International Foundation	Printable
Transfusion Tracker (for Physicians)	Patient Diaries	English	Aplastic Anemia and Myelodsyplasia Association of Canada	Printable
Treating MDS Toolkit	MDS Treatment Options	English	Aplastic Anemia & MDS International Foundation	Printable
Twitter account	Social Media	English	Aplastic Anemia & MDS International Foundation	Social Media
Twitter account	Social Media	English	MDS Foundation	Social Media
You Tube	Social Media	English	Aplastic Anemia and Myelodsyplasia Association of Canada	Video