To better understand and raise awareness of patients with MDS’ issues and needs, the MDS Alliance has designed the MDS Global Survey. The survey includes a validated quality of life tool (QUALMS) and is available in 11 languages. The insights gathered will support patients, caregivers, and advocates around the world to better understand quality of life and access challenges for patients with MDS and to raise awareness of MDS.
If you are a patient with MDS or a caregiver on behalf of a patient with MDS, please take our survey here:
As someone who has been diagnosed with MDS, or as the caregiver of a patient with MDS, your open and honest input is important.
This survey will collect information to help make decisions about how to improve patients with MDS’ quality of life and access to care. Participation in this survey is entirely voluntary. We are committed to protecting the personal data of all participants. To learn more about how we process your personal data, please read our Privacy Notice.
Please use our downloadable assets to share the survey on your social channels.