February 28
Rare Disease Day is a worldwide movement: since 2008, ALWAYS ON THE LAST DAY OF FEBRUARY, people around the world unite to raise awareness of the concerns and needs of the “orphans of medicine” and to demonstrate strength and cohesion together. Hundreds of thousands now take part every year.
On this day the MDS Alliance and their member groups around the world, come together to raise awareness of Myelodysplastic syndrome (MDS), which is a type of rare blood cancer, where the bone marrow does not produce enough healthy blood cells.
There are a number of types of MDS, some of which stay mild and can be undetected for years, others are more serious and progressive, and symptoms are felt and seen.
How can you GET INVOLVED?
Please share these materials, either on your social media platforms, or by printing out one of the posters and popping it on your local community board, healthcare setting, or other place where the information can be seen.
Social Media Graphics
Please download or share the below graphics.
Hashtag – please use in all your social posts the following hashtags:
#LIGHTUPFORRARE
#MDSA
#RAREDISEASEDAY
Facts about MDS
In raising awareness of Myelodysplastic syndrome (MDS), signs and symptoms, there are also facts that can be shared. Here are 10 facts of MDS, that you can share. Please download and print, or share on your social media channels. You find more campaign material on the page rarediseaseday.org.
The more that are shared, the greater the opportunity is for others to see and share this information. Helping someone realise they might have symptoms and encouraging them to get a blood test and be diagnosed, is the first and most important step to take.
This overview is interactive and detailed information is displayed by moving the mouse. Under the country name there is a (pink) reference to the health insurance system (if known) in this country.
