The MDS Alliance conducts a biannual global patient survey designed to better understand and raise awareness of the issues experienced by individuals living with MDS, and to use this understanding to inform evidence-based decisions about how to improve quality of life and access to care for these patients across the globe.
We are pleased to share the report of 2022 Global Survey, based on responses from nearly 700 MDS patients representing 32 countries.
We thank all those who participated in the survey, as well as the MDS Alliance general member organizations and MDS Global Survey steering committee members who facilitated this process. It is our hope that the data gathered will be a useful source of knowledge about living with MDS and serve as meaningful evidence in MDS patient advocacy efforts.
MDS Global Survey Results: Download Report