Umfrage-Bericht Die MDS-Allianz führt alle zwei Jahre eine weltweite Patientenbefragung durch, um die Herausforderungen von MDS-Patienten besser zu verstehen und das Bewusstsein dafür zu schärfen. Auf dieser Grundlage sollen evidenzbasierte Entscheidungen darüber getroffen werden, wie die Lebensqualität und der Zugang zur Versorgung für diese Patienten weltweit verbessert werden können. Wir freuen uns, den Bericht der…
Survey Report The MDS Alliance conducts a biannual global patient survey designed to better understand and raise awareness of the issues experienced by individuals living with MDS, and to use this understanding to inform evidence-based decisions about how to improve quality of life and access to care for these patients across the globe. We are…
This video cannot be played in your browser. A download version is available at Link-Addresse . You can find detailed information by following this link. What is MDS? Myelodysplastic syndromes (MDS) are a group of blood disorders that affects the bone marrow, which is the soft inner part of the bones that produces blood cells….
ENROL Webinars for Patients
The IPSS-M is an MDS prognosis calculator that combines genomic profiling with hematologic and cytogenetic parameters, improving the risk stratification of patients with MDS. This is a valuable tool for clinical decision-making, offering the prospect of tailoring diagnosis and therapeutic interventions to each patient’s molecular profile. Access the calculator (provided by the MDS foundation)
A Blood and Beyond joint declaration endorsed by the MDS Alliance. Read the Blood and Beyond recommendations to learn how Europe can better support patients with anaemia and facilitate innovation! Learn more about the Blood and Beyond joint declaration
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know about you to help you during a medical emergency. There are two versions of the emergency health information cards – one is for…
MULTILINGUAL RESOURCES – Updated on March 24 2021 GERMAN LHRM – COVID-19 und Impfen: Antworten auf häufig gestellte Fragen (FAQ) – 15.03.2021 – https://www.rki.de/SharedDocs/FAQ/COVID-Impfen/gesamt.html LHRM – Weitere Informationen zum Impfen gegen Corona – 09.03.2021 – http://www.mds-patienten-ig.org/aktuelles/weitere-informationen-zum-impfen-gegen-corona FRENCH CCM – Pr Odile BEYNE RAUZY- IUCT/Oncopole Toulouse “12 questions sur la vaccination Covid 19” – www.myelodysplasies.org/videos/66/smd-et-vaccin-covid19.html CCM –…
Supporting patients and families affected by Myelodysplastic Syndromes through education, advocacy, and community support. Together, we provide hope and resources for the MDS journey.
© 2026 MDS Alliance. All rights reserved.
Overview Mode: Shows all countries at once with color-coded treatment availability.
Details Mode: Click the “Details” button to see individual treatment maps. Select any treatment from the list to view its availability by country.
Color Legend:
Navigation:
If you have data about treatment access in your country that you’d like to share, please contact us using the form below or email us directly.
Email: [email protected]
We are particularly interested in:
Your contributions help us maintain accurate and up-to-date information for the MDS community worldwide.
