Get a copy of “Out of Shape” by Bergit Kuhle: an autobiography of life after an MDS diagnosis
Impressions of the 15 th International MDS-Symposium in Copenhagen in May 2019 – from the patient perspective
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The HARMONY Alliance launches HARMONY PLUS, a new partnership to improve outcomes for patients
15th, October, 2020 The HARMONY Alliance launches HARMONY PLUS, a new public-private partnership to improve outcomes for patients with blood cancers HARMONY PLUS builds upon the success of HARMONY in capitalizing on Big Data to speed up the development of more effective treatments for patients with blood cancers. It will leverage the HARMONY Big Data…
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Urgent appeal to healthy people: Please give blood now!
Why giving blood now? Due to the Corona pandemic – there is now a severe shortage of blood products as blood donor drives across the world are being cancelled. CLICK HERE TO DOWNLOAD THE GRAPHICS AND START YOUR OWN CAMPAIGN Why is this so critical? About 70% of all patients suffering from the rarer blood…
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Llamado urgente a personas en buen estado de salud: ¡Por favor, donad sangre!
¿Por qué hay que donar sangre en este preciso momento? Debido a la pandemia de Corona, hay una grave escasez de productos sanguíneos puesto que se han cancelado muchos campañas de donación de sangre en todo el mundo. Publica esta campaña y una solicitud especial en tus sitios web de SMD y leucemia! Compártelo en…
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La Insuficiencia de Médula Ósea y el Coronavirus (COVID-19): Recursos Multilingües y 15 Preguntas Frecuentes
RECURSOS MULTILINGÜES – Actualizados el 24 de marzo de 2021 ALEMÁN LHRM – COVID-19 und Impfen: Antworten auf häufig gestellte Fragen (FAQ) – 15.03.2021 – https://www.rki.de/SharedDocs/FAQ/COVID-Impfen/gesamt.html LHRM – Weitere Informationen zum Impfen gegen Corona – 09.03.2021 – http://www.mds-patienten-ig.org/aktuelles/weitere-informationen-zum-impfen-gegen-corona FRANCÉS CCM – Pr Odile BEYNE RAUZY- IUCT/Oncopole Toulouse “12 questions sur la vaccination Covid 19” – www.myelodysplasies.org/videos/66/smd-et-vaccin-covid19.html…
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Coronavirus (COVID-19) Guidance for Patients and Caregivers
The MDS Alliance is aware that MDS patients and their carers may be feeling anxious about the risk of infection from Coronavirus – COVID-19. Although viral defences are not necessarily weakened in MDS, most MDS patients are older and therefore already at greater risk. We would like to support our organisation members so that they…
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MDS World Awareness Day 2019: MDS Poetry
October 25th is MDS Awareness Day. This year we focus on poetry as a way of expressing our feelings about living with MDS or being affected by it. We know that MDS affects people from all over the world and it is the help of friends and family, doctors and the wider community that can…
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Día de Concientización de SMD – 25 de Octubre de 2019 – Poesías de pacientes
El 25 de octubre es el Día de Concientización de SMD. Este año nos enfocamos en la poesía como una forma de expresar nuestros sentimientos acerca de qué significa vivir con SMD o ser afectados por ella. Sabemos que SMD afecta a personas de todo el mundo y que es el apoyo de amigos y familiares,…
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Precision medicine to treat MDS in Denmark: good news for patients worldwide
by Niels Jensen Precision medicine: treating a patient’s specific cancer based on a genetic understanding of their disease In precision medicine the basic idea is to develop a treatment for the specific cancer of individual patients based on a genetic understanding of their disease. Precision medicine has also been called personalized medicine or targetted medicine….
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Much new knowledge but no new drugs
By Niels Jensen – LyLe – Patientassosiation for Lymphoma, Leukaemia and MDS (Denmark) Every two years, the MDS Foundation holds an international symposium where doctors and researchers who work to improve the opportunities for patients with MDS meet for 2½ days to present the latest research results and discuss the diagnosis and treatment of the…
