About the MDS Alliance

Who are we?

We are an international umbrella organisation that aims to ensure MDS patients, regardless of where they live, have access to the best multi-professional care.

We aim to provide member organisations, patients and healthcare teams with the resources and the latest information about MDS, including current treatment options, large international projects and events of Interest to the whole community.

We aim to share among our members best practice and skills, and become a forum for advice and guidance on a variety of issues affecting patients, such as cost effectiveness of drugs and treatments, fertility issues and many more.

We would like to campaign together, join forcers to amplify the voice of smaller organisations and help patients and health professionals to establish new patient support groups where they don’t exist.


Our Steering Committee

Cindy Anthony AAMAC

Gereon Mänzel LHRM

Jacqueline Dubow

Jacqueline Dubow CCM

Tracey Iraca MDS FUND

Sarah Liptrott Ente Ospedaliero Cantonale

Desiree Ruiters AAMDSIF

Blerina Shala CSCK

Sophie Wintrich MDS UK

Niels Jensen Dansk MDS Patient Support