About the MDS Alliance

Who are we?

We are an international umbrella organisation that aims to ensure MDS patients, regardless of where they live, have access to the best multi-professional care.

We aim to provide member organisations, patients and healthcare teams with the resources and the latest information about MDS, including current treatment options, large international projects and events of Interest to the whole community.

We aim to share among our members best practice and skills, and become a forum for advice and guidance on a variety of issues affecting patients, such as cost effectiveness of drugs and treatments, fertility issues and many more.

We would like to campaign together, join forcers to amplify the voice of smaller organisations and help patients and health professionals to establish new patient support groups where they don’t exist.


Our Steering Committee

Blerina Shala CSCK

Cindy Anthony AAMAC

Jacqueline Dubow

Jacqueline Dubow CCM

Neil Horikoshi AAMDS

Tracey Iraca MDS FUND.

Bergit Kuhle LHRM

Sarah Liptrott IEO

Mirjami Tranminh

Mirjami Tranminh SSP

Sophie Wintrich MDS UK