We know MDS patients experience chronic fatigue

but we never tire of helping them

Our "Here to Help", which was officially launched on October 25, 2016 during the MDS World Awareness Day, is an on going activity of the MDS alliance to raise awareness of MDS and the MDS Alliance network of MDS support patient support organisations.

Click here to learn more

Here to Help Resources

The MDS Alliance has developed multiple resources with the aim of raising awareness of Myelodysplastic Syndrome (MDS) Disease and the MDS Alliance.

They are targeted at patients and carers on the one hand, and hematologists and oncologists on the other and the aim is to direct them to their local MDS Alliance member to find the support they require.

The name and motto of the resources is “Here to Help”, to show to people affected by the disease that there is help at hand.

MDS Alliance members can access the resources for free via The Here to Help Resources Portal. The site is password protected.

Please contact us to access the resources and display them in your local hospital or care centre.

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