lymphome.ch Patientennetz Schweiz is a non-profit, all volunteer led organisation which was formed in 2001 and became a formal Association in 2005. Our main objective is to provide information and give support and guidance to patients and their families – by telephone and online.
We want to raise the Awareness of MDS in Switzerland and to connect MDS patients for information and experience exchange and give emotional support to patients, their relatives and friends during a life-stage characterized by illness and insecurity and to offer them this platform. We provide MDS patients and their relatives with information booklets.
- Patient support in coping with and living beyond lymphoma. (by Telephone, Email, in person)
- Patient support groups in different Swiss regions:
- Production and distribution of information material (booklets, flyers) about different lymphoma types and CLL, Cutaneous lymphoma and MDS. ·
- INFO Lymphome.ch
- Website lymphome.ch
- Experience and information exchange with other patient organisations in the field in order to expand the network and join forces.
- Educational symposium like on the occasion of WLAD Organisation of patient symposiums in order to strengthen Awareness about the disease types
- Participation in advisory boards and medical events
The following MDS information booklets from our German friends are available:
AIPaSiM is a patient-governed society supporting patients with MDS in Italy
Our mission is :
- to be a source of disease and treatment-related knowledge for patients and their caregivers
- to be a platform to connect patients and family members (also by organizing local and national meetings)
- to connect patients to experts clinicians and improving doctor-patient dialogue
- to represent patient perspective in debate with other stakeholders within the national healthcare system
Fax number +39 0287152199
Sarah Liptrott is a Clinical Research Nurse in the Division of Haematology/BMT at the IEO. She graduated from Liverpool University with a Bachelor of Nursing (Hons), and obtained her Masters Degree at Staffordshire University. Throughout her career, Sarah has specialised within oncology, working within surgery and medicine as well as chemotherapy units. In her role as Clinical Nurse Specialist she developed nurse led clinics and implemented nurse prescribing into the haemato-oncology field. She has worked as Clinical Trial Team Leader responsible for the research team and achievement of UK national targets. Sarah has authored or co-authored numerous articles in high-quality scientific journals as well as being an invited reviewer. Her educational developments include BMT training/chemotherapy/clinical trials in both UK and European settings. She has served on many committees including the European Group for Blood and Marrow Transplantation Nurses Group Research Sub Committee and is a member of the RCN – Cancer Forum and Haematology & BMT Forums.